UAE GDA in Media
How innovation and policy can turn prevention into a global engine for wellbeing
By H.E. Dr. Maryam Mohamed Fatma Matar, Founder and Chair, UAE Genetic Diseases Association (UAEGDA) H.E. Dr. Maryam Mohamed Fatma Matar, Founder and Chair, UAE Genetic Diseases Association (UAEGDA) In every global conversation on sustainability – from Davos to COP – we speak of renewable energy, circular economies, and climate resilience.
FDA Approves Gene Therapy for Treatment of Spinal Muscular Atrophy
FDA Approves Gene Therapy for Treatment of Spinal Muscular Atrophy Release: November 24, 2025 The U.S. Food and Drug Administration today approved Itvisma (onasemnogene abeparvovec-brve) for the treatment of spinal muscular atrophy (SMA) in adult and pediatric patients 2 years of age and older with confirmed mutation in the
Largest Study of Its Kind Reveals The Genes Behind Dyslexia
Largest Study of Its Kind Reveals The Genes Behind Dyslexia massive study involving genetic data from over 1.2 million people has identified over a dozen new gene regions associated with dyslexia. “We have produced the largest genetic study of dyslexia to date,” write the study authors, led by University of Edinburgh
Scientists Reveal Hidden Machinery of Mitochondria in Stunning Detail
Scientists Reveal Hidden Machinery of Mitochondria in Stunning Detail By University of Basel. March 26, 2025 Scientists in Basel revealed that energy-producing proteins in mitochondria form large supercomplexes, boosting ATP production efficiency and offering new insights into cell biology, evolution, and disease. Mitochondria, often called the powerhouses of the cell,
Gene therapy improves hearing in children with hereditary deafness
Regeneron Pharmaceuticals announced that its experimental gene therapy showed improved hearing in 10 of 11 children aged 10 months to 16 years who were born with hearing loss caused by genetic mutations. Promising results for children with hereditary deafness The company explained that the first child who received the gene
Guidance for human genome data collection, access, use and sharing
https://iris.who.int/
CRISPR Snips Away Extra Chromosomes, Offering New Hope for Down Syndrome Treatment
February 23, 2025 A proof-of-concept study shows that CRISPR-Cas9 can eliminate extra chromosome copies in Down syndrome cells. The method restores normal gene function but is not yet ready for human trials. Scientists are exploring gene editing as a way to correct trisomy at the cellular level. Using CRISPR-Cas9, researchers
Emirates Investment Magazine Awards Best Human Investment Leaders in the Middle East and North Africa for 2024
Last updated March 7, 2025 Under the slogan: The Emirates, a bridge to the future, Dubai witnesses a grand ceremony to honor 50 figures from 19 countries Honoring Medical and Humanitarian Achievement In the health and humanitarian support sector, the eighth session of the Emirati Investments Magazine Awards awarded Her
KAUST Scientists Discover a Gene Linked to Congenital Heart Defects in Children
In Collaboration with Global Research Institutions, Including Saudi Universities and Hospitals A new study led by scientists from King Abdullah University of Science and Technology (KAUST) has identified that the gene CIROZ plays a role in causing congenital heart defects and organ positioning disorders in children. These findings were achieved