One of the main objectives of a genetic diseases association in the UAE is to raise public awareness about genetic diseases and their impact on individuals, families, and communities. By increasing awareness, the association can help reduce stigma and promote early diagnosis and treatment.
Another objective of a genetic diseases’ association is to provide support to individuals and families affected by genetic diseases. This can include emotional support, practical assistance, and access to information and resources.
A genetic diseases association may also have a research agenda, with the objective of advancing knowledge and understanding of genetic diseases. This can involve funding research projects, collaborating with academic institutions and researchers, and advocating for increased funding and support for genetic research.
Genetic diseases associations may advocate for changes to policies and laws that impact individuals and families affected by genetic diseases. This can include advocating for increased funding for research, promoting access to healthcare services and resources, and raising awareness about genetic discrimination.
A genetic diseases association may collaborate with other organizations, such as healthcare providers, patient advocacy groups, and government agencies, to achieve their objectives. By working together, these organizations can pool resources and expertise to improve the lives of individuals and families affected by genetic diseases.