Information and Education
A genetic diseases association may provide information and education resources to individuals and families affected by genetic diseases. This could include information on diagnosis, treatment, and management of genetic diseases, as well as resources for coping with the emotional and practical challenges of living with these conditions.
Information and education services can help individuals and families affected by genetic diseases to understand their condition and make informed decisions about treatment and management. Some of the specific resources that a genetic diseases association may provide include:
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Online resources such as webinars, videos, and educational materials that individuals and families can access from home.
Brochures and pamphlets that provide an overview of different genetic diseases and their symptoms, diagnosis, and treatment options.
Workshops and conferences that provide opportunities for individuals and families to learn about the latest advances in genetic research and treatment.
Genetic Screening (NEW)