About Us
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The UAE Genetic Diseases Association (UAEGDA) in the United Arab Emirates is a non-profit organization that provides support, education, and advocacy for individuals and families affected by genetic diseases. Founded in 2004, the GDA has rapidly become a leading voice in the field of genetic diseases in the UAE, working tirelessly to promote awareness and understanding of these conditions and to improve the lives of those affected by them.
UAE Genetic Diseases Association UAEGDA and H.H Sheikh Zayed Research Centre were founded in 2004 as a dedication to the memory of His Highness Sheikh Zayed bin Sultan Al Nahyan, founding father of the U.A.E. In 2019, the “year of Tolerance” UAE GDA is committed to bring diverse experts and tools in genetic research to UAE and the Arab world for a healthier and happier community to the UAE.
The GDA offers a wide range of services and resources for individuals and families affected by genetic diseases. These services include:
Information & Education
The GDA provides a wealth of educational resources for individuals and families affected by genetic diseases, including brochures, pamphlets, and online resources that provide information on different genetic conditions, their symptoms, diagnosis, and treatment options.
Support Groups
The GDA offers a variety of support groups for individuals and families affected by genetic diseases, providing a safe and supportive space where people can share their experiences, seek advice and guidance, and connect with others who are going through similar challenges.
Advocacy
The GDA is actively involved in advocating for the needs and interests of individuals and families affected by genetic diseases. This includes lobbying policymakers to increase funding for genetic research and improve access to healthcare services and resources, organizing public awareness campaigns, and working with other organizations and stakeholders to promote policy change and increase support for those affected by genetic diseases.
Genetic Counselling
The GDA provides genetic counseling services to help individuals and families affected by genetic diseases to understand their risk of developing a genetic condition and make informed decisions about genetic testing, treatment, and family planning.
Research
The GDA is committed to supporting research that advances knowledge and understanding of genetic diseases, and to developing new treatments and therapies that can improve outcomes for individuals with these conditions.
Awareness Campaigns
The GDA organizes awareness campaigns to promote understanding of genetic diseases and reduce stigma and misconceptions about these conditions. These campaigns use various channels to reach a wide audience, such as social media, advertising, events, and collaborations with media outlets and influencers.
The GDA also works closely with other organizations and stakeholders in the field of genetic diseases, both within the UAE and internationally. This includes collaborations with research institutions, hospitals, and other healthcare providers, as well as partnerships with other non-profit organizations and advocacy groups.
In addition to its core services, the GDA also organizes a range of events and activities throughout the year to promote awareness and understanding of genetic diseases. These include walks, runs, and other fundraising events, as well as conferences, workshops, and other educational activities.
Overall, the Genetic Diseases Association in the United Arab Emirates is an important and valuable resource for individuals and families affected by genetic diseases. Through its various services and initiatives, the GDA is working to improve the lives of those affected by genetic diseases, promote greater understanding and awareness of these conditions, and support research that can lead to new treatments and therapies.